SubscribeLog in
Connect with us

China Health & Science

China Discusses Medical Secrecy After Woman Infects Unaware Husband with HIV

The story of a young man being infected with HIV because he was unaware that his wife was HIV positive has made the headlines in China. Netizens discuss an ethical dilemma: should patient confidentiality override the safety of the partner?

Manya Koetse

Published

on

The story of a young man being infected with HIV because he was unaware that his wife was HIV positive has made the headlines in China. Netizens discuss an ethical dilemma: should patient confidentiality override the safety of the partner?

The news that Xiaoxin has HIV came as a bolt out of the blue. The young man from Henan Province is in the prime of his life and just got married. He was completely oblivious to the fact that his wife had been diagnosed with HIV. Now it is too late to take extra measures.

Xiaoxin’s case has become trending on Sina Weibo, where netizens are discussing an ethical dilemma: should the doctors have told Xiaoxin of his wife’s condition, or was it right for them to maintain professional secrecy?

 

“I lost all hope. I felt like my world was crumbling. I am still so young, what am I going to do?”

 

As reported by Legal Evening News (法制晚报), the young man Xiaoxin from Yongcheng, Henan Province, told his story on City TV this week.

In March of 2015, Xiaoxin was preparing to get married with his fiancee Xiaoxie. In order to get their marriage registration, they needed to do pre-marital health check-ups at the local hospital. The results of the check-ups came out quickly, Xiaoxin says, and although Xiaoxie was called into the doctor’s office for some time, the doctor later told him that everything was normal.

Three months later, when the couple was already married and living together, Xiaoxin, who was on a business trip, got the news from Xiaoxie that she had received a phone call from the Center for Disease Control (CDC) telling her that a confirmatory test came out positive for HIV and that he might have contracted it too – which later out turned out to be the case. Xiaoxin told City TV: “At that time I lost all hope. I felt like my world was crumbling. I am still so young, what am I going to do?”

1487310126

Xiaoxin tells City TV: “At that time I lost all hope. I felt like my world was crumbling. I am still so young, what am I going to do?”
According to the CDC, Mrs. Xiaoxie had since long known she had HIV; they have her records on file to prove it. The rapid pre-marital tests in March had also indicated that she was “likely to be HIV positive”. Xiaoxin’s name was written on top of the results cart, but he claims he never even saw those papers. His wife also claims that she did not know, and that she does not know why the hospital was not more clear to her when the results had come through in March. The question remains: who was hiding the truth, Xiaoxie or the CDC?

Xiaoxin is now suing the hospital for not disclosing the results of the pre-marital tests with him.

 

“What is more important, Xiaoxie’s right to medical secrecy, or Xiaoxin’s right to decide over his own life and health?”

 

Chinese media and netizens debate what is more important, Xiaoxie’s right to medical secrecy, or Xiaoxin’s right to decide over his own life and health?

According to experts, if Xiaoxie knew she had contracted HIV, she should have told her (future) husband herself. Medical staff and the CDC have professional confidentiality and are not allowed to inform others about her condition. Some experts and lawyers believe that this confidentiality, however, should not apply to those who live together with the patient and who can easily be infected, especially when it concerns their legal spouse.

Yunnan, Guangxi, and other provinces have already proposed a new law that gives local disease control departments the right to inform spouses or partners of AIDS or HIV patients of their condition, if the patient does not take the initiative to inform people themselves, Legal Evening News writes.

 

“Why don’t you attack the woman who concealed this?”

 

HIV/AIDS is a major problem in China. The most common form of HIV infection is through heterosexual transmission (46.5% in 2011), followed by injection drug use (28.4%) (Saag 2014, 329). According to HIV specialist Nitin Saksena, the number of young, predominantly gay men getting infected has also been growing at an alarming rate in 2015. Faltering sex education and unawareness about HIV are contributing factors to China’s HIV epidemic. Those living with HIV face serious social stigmas (also read our story on the 8-year-old with HIV who was banned from his village).

“This story neglects one thing,” a Weibo netizen comments on the case of Xiaoxin: “Which is that doctors are required to maintain the patient’s medical confidentiality. So shouldn’t the woman who concealed her condition be the one you attack? The law states that doctors need to protect their patient’s privacy, and it’s not like you cannot get married when you have AIDS. So before you start blaming doctors, you should first look at the whole picture.”

Sharing one’s HIV status is a personal choice, but in some countries it may also be a legal requirement. Some states in the US have laws that stipulate that HIV patients have to tell specific people about their diagnosis. In Australia, a man who was accused of inflicting HIV on another man appeared in court this month. He was charged with “recklessly inflicting grievous bodily harm”. In The Netherlands, three men were sentenced to prison (one of them for 12 years) in 2005 for deliberately infecting other men with HIV during private sex parties.

For doctors, keeping patients’ HIV status a secret from their (bed) partners is a medical duty, but sometimes also becomes a moral dilemma (also read: Should Doctors Keep Patients’ HIV Status a Secret?)

 

“If you don’t let him know, then what is the whole purpose of the pre-marital check-up?”

 

Weibo user Qiu Haihai says: “This belongs to the realm of personal privacy. The hospital has no obligation to tell others. If the man would break up with the woman because of it, and she commits suicide afterwards, her family would hold the hospital responsible.”

Another netizen remarks that the pre-marital health check-up is not an ordinary health check-up, but that it is a confirmation that both sides are healthy before they get married: “If you don’t let him know [about her HIV status], then what is the whole purpose of the pre-marital checkup?”

“The doctor did not just conceal information,” one person says: “He deceived him by saying everything was normal.”

“What a poor guy,” another commenter writes: “You might as well stay together and live in peace now. Take it easy, get medical treatment. Medical science is improving all the time. Maybe a miracle will happen. May Buddha bless you and lead you out of the shadows towards a healthy future.”

By Manya Koetse

References (if not stated here then they are linked through in-text)

Saag, Michael S. 2014. Updates in HIV and AIDS: Part I, An Issue of Infectious Disease Clinics. Birmingham: Elsevier.

©2016 Whatsonweibo. All rights reserved. Do not reproduce our content without permission – you can contact us at info@whatsonweibo.com.

Manya Koetse is the founder and editor-in-chief of whatsonweibo.com. She is a writer, public speaker, and researcher (Sinologist, MPhil) on social trends, digital developments, and new media in an ever-changing China, with a focus on Chinese society, pop culture, and gender issues. She shares her love for hotpot on hotpotambassador.com. Contact at manya@whatsonweibo.com, or follow on Twitter.

Continue Reading
1 Comment

1 Comment

  1. Avatar

    Nadia

    February 15, 2016 at 8:27 am

    May Jesus Christ have mercy on Xiaoxin for not knowing about his wifes HIV status.

Leave a Reply

Your email address will not be published. Required fields are marked *

China Food & Drinks

Chinese Woman with Heartbreak Passes Away after Drinking Bottle of Baijiu

Three friends are held partially responsible for not intervening when the woman consumed 500ml of baijiu.

Manya Koetse

Published

on

An incident that happened on the night of May 21, 2023, has become a trending topic on Chinese social media today after a local court examined the case.

A woman named ‘Xiao Qiu’ (alias), a resident of Jiangxi’s Nanchang, apparently attempted to drink her sorrows away after a heartbreaking breakup.

She spent the night at a friend’s house, where she drank about 50cl of baijiu (白酒), a popular Chinese spirit distilled from fermented sorghum that contains between 35% and 60% alcohol. One entire bottle of baijiu, such as Moutai, is usually 50cl.

She was together with three female friends. One of them also consumed baijiu, although not as much, and the two other friends did not drink at all.

As reported by Jiupai News, the intoxicated Xiao Qu ended up sleeping in her car, while one of her sober friends stayed with her. However, at about 5 AM, her friend discovered that Xiao Qiu was no longer breathing. Just about an hour later, she was declared dead at the local Emergency Center. The cause of death was ruled as cardiac and respiratory failure due to alcohol poisoning.

The court found that Xiao Qu’s friends were partly responsible for her death, citing their failure to prevent her excessive drinking and inadequate assistance following her baijiu binge drink session. Each friend was directed to contribute to the compensation for medical expenses and pain and suffering incurred by Qiu’s family.

The friend who also consumed baijiu was assigned a 6% compensation responsibility, while the other two were assigned 3% each.

On Weibo, many commenters do not agree with the court’s decision, asserting that adult individuals should not be held accountable when a friend goes on a drinking spree. Some commenters wrote: “You can tell someone not to drink, but what if they don’t listen?” “Should we record ourselves telling friends not to drink too much from now on?”

This is not the first time for friends to be held liable for an alcohol-related death in China. In 2018, multiple stories went viral involving people who died after excessive drinking at social gatherings.

One case involved a 30-year-old Chinese man who was found dead in his hotel room bathtub in Yangzhou after a formal dinner with friends where he allegedly drank heavily. The man reportedly died of a heart attack. His friends reached a 1 million yuan (±US$157,000) settlement with his family, with the cost shared among the friends who were present during the night.

Surveillance cameras in Jinhua captured how the man was unable to stand or walk after drinking with his friends.

Another case involved a man who died when he was left by his friends at a hotel in Jinhua, Zhejiang province, after heavily drinking at a banquet. Surveillance cameras captured how the man was unable to stand or walk after drinking with his friends. Those friends also paid a compensation together of 610,000 yuan (US$96,000) to the man’s family.

Organisers of an alcohol drinking contest in Henan province were also ordered to pay a compensation of over US$70,000 after one participant died due to excessive alcohol intake in July of 2017.

These cases also triggered online discussions about how Chinese traditional drinking culture often encourages people at the table to drink as much as they can or to exceed their limits; the goal sometimes is to literally “take someone to the ground by drinking.” When someone proposes a toast, everyone at the table is required to finish their glasses, sometimes at a very high pace.

In light of the latest news, some commenters write on Weibo: “No matter what kind of drinking gathering it is, for someone who is already drunk, others should intervene to prevent them from continuing to drink. Even if they invite, provoke, or insist on drinking themselves, they should not be allowed to continue. Otherwise, it not only harms them, you might end up facing legal responsibility yourself.”

Others remind people that overindulging in alcohol when you’re in a state of distress is never a good idea, and that no heartbreak is worth getting drunk over: “There are plenty of other fish in the sea.”

By Manya Koetse

Get the story behind the hashtag. Subscribe to What’s on Weibo here to receive our newsletter and get access to our latest articles:

Spotted a mistake or want to add something? Please let us know in comments below or email us. First-time commenters, please be patient – we will have to manually approve your comment before it appears.

©2023 Whatsonweibo. All rights reserved. Do not reproduce our content without permission – you can contact us at info@whatsonweibo.com.

Continue Reading

China Health & Science

‘Sister Blood Points’ Controversy: Shanghai Woman’s Tibet Blood Donations Ignite Privilege Debate

Dozens of local public officials in Tibet donated blood to rescue a Shanghainese woman. Netizens believe it’s a matter of privilege.

Manya Koetse

Published

on

The medical rescue of a critically injured Shanghai woman in Tibet has recently triggered major controversy on Chinese social media after netizens suspected that the woman’s treatment may have been facilitated through the abuse of power.

What was supposed to be a romantic honeymoon getaway turned into a nightmare for newlyweds Yu Yanyan (27, 余言言) and her husband Tao Li (29, 陶立).

On October 14, just two weeks after their wedding, the couple from Shanghai was driving on China’s National Highway 219. Their destination was Ngari Prefecture in Tibet’s far west, where the average elevation is 4500 meters.

As they drove by the famous mountain pass Jieshan Daban (界山達阪), situated at an altitude of 5347 meters, they suddenly realized that the altitude was affecting them. Soon, Tao Li, who was driving the car, lost consciousness and crashed the car. Yu Yanyan, on the passenger side, was badly injured in the crash.

The crashed car, image via Beijing News/Xinjinbao (source).

What followed was a complicated, time-sensitive, and costly rescue operation. At the Ngari People’s Hospital (阿里地区人民医院), Yu was diagnosed with a ruptured liver, abdominal bleeding, hemorrhagic shock, and thoracic trauma. She was losing a lot of blood in a short time and required surgery, but there was not enough blood available for a blood transfusion at the time in the sparsely populated region, as reported by Beijing News.

 
Tibetan Civil Servants to the Rescue
 

While the hospital made efforts to secure donations, specifically requiring an adequate supply of A+ type blood, Yu’s husband was reportedly advised to reach out to the Shanghai Municipal Health Commission (上海卫健委) to inquire about potential assistance. One of his aunts, or his ‘auntie’, allegedly helped him to contact them.

These efforts appeared to be fruitful. Between October 16-17, just days following the crash, numerous members of the public and dozens of local civil servants in Tibet, including firefighters, policemen, and military personnel, stepped forward to donate blood, contributing to over 7000 mL of A-type Rh-positive blood that ultimately saved Yu’s life.

Allegedly thanks to the Tibet office of the Shanghai Municipal People’s Government, a medical specialist from Shanghai was even sent to assist in the medical treatment of Yu at the Ngari hospital.

As Yu later required more advanced medical care and surgeries, she was advised to go to a bigger hospital. She was then transferred via a specially arranged chartered plane. The total costs of this medical chartered plane flight from Ngari to Sichuan’s Huaxi hospital (四川华西医院), arranged by Yu’s father, allegedly cost 1,2 million yuan (US$169.230).

After receiving surgery at the Huaxi Hospital, Yu was in stable condition and was transferred to Shanghai.

 
An Abuse of Power?
 

Yu’s story began drawing notice, eventually garnering nationwide media coverage, after Yu herself posted a video on her social media account (Douyin) in which she recounted her experiences. Yu, who only had a relatively small group of followers, told about her rescue operation and her recovery. But instead of garnering sympathy, it led to many questions from netizens and went viral. The video was later deleted.

Screenshots from the since deleted Douyin video.

Who was the ‘auntie’ who reached out to the Shanghai Municipal Health Commission? How were Tibet public officials made to donate blood for this Shanghai patient? What power dynamics were in play that facilitated the mobilization of people in this manner by the family?

People became upset, as they suspected Yu’s life had only been saved because of an abuse of power, and that ordinary Chinese patients would never have never received a similar treatment.

They started referring to Yu as ‘Sister Blood Points.’ The Chinese term is xuè cáo jiě 血槽姐, with xuè cáo 血槽 (lit. blood groove) often being used in the world of gaming to refer to the health bar, an image in video games that shows the player how much energy or blood or strength they have left before it’s game over.

Various online AI-generated images featuring a portrayal of “Sister Blood Points.”

There were also various digital (AI-generated) images showing Yu surrounded by bags of donated blood, portraying her as a privileged, blood-sucking Shanghai ‘princess’ in Tibet.

Following the online commotion, the Ngari Propaganda Department issued a statement on November 29 promising to look into the issue. Additionally, in the first week of December, various Chinese media outlets also started to investigate the case.

 
An Ordinary Patient in Extraordinary Circumstances
 

On December 6, online newspaper The Paper (澎湃新闻) published an article together with Shangguan News (上观新闻) which answered some of the most pressing questions surrounding the case.

The Paper reported that they found no officially organized mobilization of public officials or members of the public to donate blood. Instead, local workers and individuals donated blood after learning about the woman’s situation through various channels, including from the hospital staff. Yu Yanyan’s husband Tao called the successful blood donation campaign a result of “multi-party mobilization” (“这是我们多方动员的结果,确实不是有组织的。”)

The Shanghai Municipal Health Commission also denied that they had contacted health authorities in Tibet to ask civil servants to donate blood. They claimed their members of staff did not personally know the patient nor any members of her or her husband’s family.

Furthermore, the article says that the woman known as ‘auntie’ is a 60-year-old retired woman who previously worked at a crafts factory. Upon learning about Yu’s predicament, she forwarded the information to her daughter-in-law, who works at a bank and also did all she could to spread the news and ask for help. This eventually led to the Tibet office of the Shanghai Municipal People’s Government being updated on the situation.

The Tibet office has refuted any suggestion that personal relationships influenced the procedures that resulted in the dispatch of a Shanghai medical expert to assist at Ngari People’s Hospital. A Shanghai medical team stationed in Tibet received a request for urgent support at the hospital and, following their ethical work guidelines, dispatched an expert to provide assistance.

The Paper further stated that nor Yu, nor her husband or their family were officials. In order to pay for the medical flight, Yu’s parents used family savings and borrowed money from others.

All of the information that was coming out about the entire ordeal seemed to indicate that Yu was just an ordinary patient in extraordinary circumstances.

 
A Sign of Distrust
 

While certain commenters believe that the latest information has put an end to weeks of speculation, others continue to harbor suspicions that there might be more to the story – they are not satisfied with the answers provided on December 6.

As some netizens dug up screenshots of online calls for help from Tao, Yu’s husband, some commenters responded: “This only makes it clearer that there’s no special status (特殊身份) here. Real influential officials wouldn’t go so low as to seek help online. A simple phone call would have quickly resolved their issue.”

In the end, the entire ordeal, now labeled “The Civil Servant Blood Donation Incident” (公务员献血事件) on Chinese social media, reveals more about public distrust in the transparency of China’s healthcare system than it does about Yu, her family, or the situation in Tibet.

While frustrations regarding privilege and power abuse within China’s healthcare system have existed for years, this issue has gained significant public attention this year in light of the launch of a top-down anti-corruption campaign targeting the healthcare industry.

This issue is especially important due to China’s longstanding struggle with public mistrust in the medical care sector. Some studies even suggest that China’s healthcare system has suffered from a “trust crisis among the public” since the 1990s (Chen & Cheng 2022, 2).

Multiple factors contribute to the relatively low trust in the Chinese healthcare system, but access and costs both play major roles. The sentence “Getting medical attention is difficult, getting medical attention is expensive” (Kànbìng nán, kànbìng guì 看病难,看病贵) has become a well-known expression among Chinese patients dissatisfied with the challenges they encounter in both accessibility and affordability when seeking medical treatments.

Most medical providers in China have become increasingly commercialized and profit-driven since the 1980s, leading to problems with crime and corruption within the medical system as medical professionals are expected to balance both a focus on patient well-being and financial gain. With doctors contending with low pay and incentive-based labor, bribery has emerged as a well-known problem, often considered somewhat of an “open secret” (Fun & Yao 2017, 30-31).

The prevalence of such issues has fueled public frustration, making individual cases like Yu Yanyan’s a source of intense controversy. In an environment where “getting medical attention is difficult, getting medical attention is expensive,” and where corruption is a notorious problem, many people simply do not think it is possible for one young woman to receive so much medical assistance from doctors and civil servants without the involvement of connections, power abuse, and bribery in the process.

Now that more details about the ‘blood point sister’ story have come to light, most netizens have started to question the truth behind this story and realize that Yu might just be an ordinary citizen, while some bloggers are still demanding more answers. In the end, most agree that it is not really about Miss Yu at all, but about whether or not they could expect similar medical treatment if they would end up in such a terrible situation.

“Is there currently an emergency response system in place that allows ordinary people to seek help in equally urgent crises?” (“当前是否存在一个紧急响应机制,可以让普通人在遇到同样紧急的危机时,能寻求帮助?”) one Sina blogger wonders.

“It is actually not important to know if they had special privileges or not,” one Weibo commenter writes: “I just hope that if patients need donated blood in the future, they will get the same treatment.”

By Manya Koetse, with contributions by Miranda Barnes

Get the story behind the hashtag. Subscribe to What’s on Weibo here to receive our newsletter and get access to our latest articles:

References:

Chen, Lu, and Miaoting Cheng. 2022. “Exploring Chinese Elderly’s Trust in the Healthcare System: Empirical Evidence from a Population-Based Survey in China.” International Journal of Environmental Research and Public Health 19 (24): 16461-.

Fun, Yujing & Zelin Yao. 2017. “A State of Contradiction: Medical Corruption and Strain in Beijing Public Hospitals. In: Børge Bakken (Ed.), Crime and the Chinese Dream, Hong Kong University Press: 20–39.

Spotted a mistake or want to add something? Please let us know in comments below or email us. First-time commenters, please be patient – we will have to manually approve your comment before it appears.

©2023 Whatsonweibo. All rights reserved. Do not reproduce our content without permission – you can contact us at info@whatsonweibo.com.

Continue Reading

Subscribe

What’s on Weibo is run by Manya Koetse (@manyapan), offering independent analysis of social trends in China for over a decade. Subscribe to show your support and gain access to all content, including the Weibo Watch newsletter, providing deeper insights into the China trends that matter.

Manya Koetse's Profile Picture

Get in touch

Would you like to become a contributor, or do you have any tips or suggestions? Get in touch here!

Popular Reads