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China Health & Science

Chinese Baby Girl’s Birth Defect Raises Discussion on Prenatal Screening Accuracy

The birth of an infant with physical abnormalities, despite recurrent prenatal screenings, has sparked discussions on Chinese social media. A running investigation will reveal whether the hospital can be held accountable.

Manya Koetse

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The birth of an infant with physical abnormalities, despite recurrent prenatal screenings, has sparked discussions on Chinese social media. A running investigation will reveal whether the hospital can be held accountable.

A Chinese baby girl has made the news after she was born with birth defects, despite 8 prenatal screenings allegedly showing no health problems in the unborn infant.

On August 26, the 26-year-old Youping Lin from Shenzhen gave birth to a baby girl. Although the woman told Chinese media the labor went well, she was shocked to learn her newborn had severe psychical abnormalities, with the right side of the face missing the nostril and ear. The baby’s right eye is also closed, Lin said.

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The baby girl, born in Shenzhen on August 26.

According to The Paper and Legal Evening News (November 8), the girl’s birth defects nearly made her mother “collapse” and has made her clinically depressed.

 

“In a total of 8 prenatal screenings and 5 ultrasounds, doctors repeatedly told Lin that the unborn baby was perfectly normal.”

 

In a total of 8 prenatal screenings and 5 ultrasounds, doctors told Lin that the unborn baby was perfectly normal.

A running investigation by a third party institution [not further defined in Chinese media reports] will reveal if the hospital can be held accountable for the baby’s birth defects.

Youping Lin got pregnant in late 2015 and went for her first prenatal testing in February of 2016 at the Futian Renmin Hospital in Shenzhen. The ultrasounds included one 3D ultrasound. At the time, the view on the right side of the unborn baby’s face was blocked by its own hand. Nevertheless, doctors told the mother the unborn baby was completely normal.

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According to The Paper, hospital representatives have stated that they have used all possible prenatal screenings to detect abnormalities. They also said that although it is extremely rare for birth defects such as these to go unnoticed in prenatal screenings, they cannot be completely ruled out.

A similar news story also came out earlier this year, when a woman gave birth to a baby that was missing one arm. The distressed mother told reporters that repeated ultrasounds also did not spot the fact that her unborn baby had a birth defect.

 

“In China, approximately 900,000 infants are born with a birth defect or disability every year.”

 

Worldwide, 6% of annual live births are affected by birth defects. China has a relatively high occurrence; approximately 900,000 infants are born with a birth defect or disability every year, which is around 5.6% of total newborns (Liu et al 2016, 3615). Pregnancy affected by serious anomalies is allowed to be terminated at any time of the pregnancy in the People’s Republic of China (Deng et al 2015, 312).

On the Sina Weibo social media platform, the case has led to a discussion on who is responsible for the child’s physical abnormalities.

Many commenters think that the hospital is responsible: “The fact that the doctor said the unborn child was normal, even while the right side of the face was blocked by its hand, shows that they had a low sense of responsibility; that was just wishful thinking,” one netizen comments.

“After 8 prenatal screenings, this did not come out?!”, another Weibo user comments.

As reported by The Paper, hospital representatives have admitted that doctors would normally do a second 3D ultrasound if the fetus is not fully visible in the first one, but that this was not done in the case of Youping Lin.

“Poor baby girl! Is there no way to do plastic surgery? The doctors should help,” one commenter says.

“This is up for the law to decide. Who ever is responsible should take responsibility,” another Weibo user comments.

“But how can this be compensated for?” another netizen wonders: “In the end, it is the child and its family that will suffer. What kind of compensation will lessen their suffering?” Others also agree, writing: “What does it matter who is responsible? What matters is what will happen to this girl.”

 

“Some families consider their disabled child a shameful secret to be hidden.”

 

Giving birth to a child with severe physical abnormalities and/or disability has a huge impact on Chinese parents and families. People with disabilities are often stigmatized in China. A large number of disabled young children have no access to education because schools refuse to accept them.

Due to the ubiquitous stigmatization and discrimination, some families even consider their disabled child a “shameful secret to be hidden” (Coonan 2016).

Another major burden to Chinese households living with a child with a birth defect or disability is that it greatly affects their living standard. Without access to public welfare, medical treatments can be very costly or even unaffordable to some families. In Disability Policy in China (2016), the director of a large State Child Welfare institution is quoted telling about a 4-year-old girl that was abandoned at the Tianjin Railway station; the institution’s staff found that the girl had already had two major surgeries and that she needed just one more operation in order to survive (Mendes & Srighantan 2009, 1).

With such heavy burdens, many expecting parents will choose to terminate pregnancies when the unborn baby is diagnosed with a birth defect. In the case of Down Syndrome, around 95% of Chinese women terminate their pregnancy after learning the syndrome is detected in the fetus.

China’s Ministry of Health has promoted nationwide prenatal screenings for birth defects since 2003 (Deng et al 2015, 312). As pointed out in recent Chinese research, there has since been a sharp increase in the percentage of prenatal diagnosis and consequential birth termination (ibid., 315).

 

“Poor baby, I hope the parents will not ignore her and take care of her.”

 

Many Chinese netizens reflect on this news story and think about their own family. Discussions about the ethical issue of possible abortion for fetal abnormality, that is more prevalent in western countries, seem practically absent on Chinese social media. One of the main issues under discussion is the cost of prenatal screenings and their trustworthiness – this story concerned many mothers-to-be: “As an expectant mother, this news really worries me,” one woman replies.

Another person writes: “I am so very happy my baby is healthy. I also feel bad for this family that will be so burdened from now on, poor girl.”

“Poor baby, I hope the parents will not ignore her and take care of her,” one commenter says. Other Weibo users are also concerned about the girl’s future: “What will her life look like? She will endure much pain, just as her parents.”

– By Manya Koetse
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References

Coonan, Clifford. 2016. “Paralympic success challenges China’s attitude to disability.” Irish Times (October 3) http://www.irishtimes.com/news/world/asia-pacific/paralympic-success-challenges-china-s-attitude-to-disability-1.2813993 [8.11.16].

Deng, C., Yi, L., Mu, Y., Zhu, J., Qin, Y., Fan, X., Li, Q. & Dai, L. 2015. “Recent trends in the birth prevalence of Down syndrome in China: impact of prenatal diagnosis and subsequent terminations.” Prenatal Diagnosis, 35(4): 311–318.

Liu, Q.-G., Sun, J., Xiao, X., & Song, G.-R. 2016. “Birth Defects Data from Surveillance Hospitals in Dalian City, China, 2006-2010.” The Journal of Maternal-Fetal & Neonatal Medicine, 7058 (November): 1–22.

Mendes, Errol, and Sakunthala Srighantan (ed). 2009. Confronting Discrimination and Inequality in China: Chinese and Canadian Perspectives. Ottawa: University of Ottawa Press.

NB: other references are linked to in-text.

©2016 Whatsonweibo. All rights reserved. Do not reproduce our content without permission – you can contact us at info@whatsonweibo.com.

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Manya is the founder and editor-in-chief of What's on Weibo, offering independent analysis of social trends, online media, and digital culture in China for over a decade. Subscribe to gain access to content, including the Weibo Watch newsletter, which provides deeper insights into the China trends that matter. More about Manya at manyakoetse.com or follow on X.

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China Health & Science

Stolen Bodies, Censored Headlines: Shanxi Aorui’s Human Bone Scandal

A Chinese company illegally acquired thousands of corpses to produce bone graft materials sold to hospitals—a major scandal now being tightly controlled on social media.

Manya Koetse

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On Thursday night, August 8, while most trending topic lists on Weibo were all about the Olympics, a new and remarkable topic suddenly rose to the number one, namely that about the “Illegal Human Bone Case.” Just moments later, however, the topic had already disappeared from the Weibo hot search list.

An article about the topic by Chinese media outlet The Paper (澎湃)1 that had just been published hours earlier on August 8 had already been taken offline. Later, an article published on The Observer (观察)2 was also redirected. Another article published on the website of Caixin and state broadcaster CCTV similarly disappeared, 3 along with many other headlines.4

However, at the time of writing, there are some articles on the issue, such as by Sina News or Phoenix News, that remained accessible.

The story centers on Shanxi Aorui Bio-Materials Co., Ltd. (山西奥瑞生物材料有限公司), also known as Shanxi Osteorad in English, a company founded in 1999 that specializes in the production and supply of bone graft products.

On August 7, a prominent Chinese lawyer named Yi Shenghua (易胜华), who has a large following on Weibo, exposed details of Shanxi Aorui’s involvement in illegal and unethical practices surrounding the purchase of human bones. The company engaged in these practices for over eight years, from January 2015 to June 2023, generating an income of 380 million yuan ($53 million) from these activities.

These details had previously been disclosed by the Taiyuan Public Security Bureau in May of this year. The case has allegedly been transferred to the Taiyuan Procuratorate for review and potential prosecution, but it has yet to be concluded due to its complexity, involving some 75 suspects.

Over the years, Shanxi Aorui illegally acquired thousands of human remains, reportedly forging body donation registration forms and other documents to illegally purchase bodies from hospitals, funeral homes, and crematoriums from various places, from Sichuan Guangxi, Shandong, and other places. These human remains were then used to produce allogeneic bone implant materials, primarily sold to hospitals.

Due to the high demand for bone implant materials and limited supply, it is an incredibly lucrative industry. Some reports claim that those selling the human remains to Shanxi Aorui could charge between 10,000 and 22,000 yuan per corpse ($1400-$3000).

“I’ve been a criminal lawyer for many years, and have handled all kinds of cases, but this is the first time for me to be so shocked and angry,” Yi Shenghua wrote in his post (screenshot available via RFA.org).”What makes me particularly lose hope is that the maximum punishment for these kinds of people under the current law is only three years.”

However, Yi Shenghua’s Weibo post about the issue was later blocked from public view. “I can still see my own post, but apparently, others cannot,” Yi wrote at 17:35 on Thursday.

On August 9, China’s major pharmaceutical company Sinopharm issued a statement in light of the controversy surrounding the human bone case, stating it has never had any kind of relationship with the Shanxi Aorui company.

On Friday, the news topic on Chinese social media was tightly controlled. Various media outlets, from Weibo to Douyin, reported on the issue, but despite the public’s interest in the scandal, not a single comment could be seen under multiple threads.

‘Even Douyin blocked the Shanxi Aorui incident. Is this the government stepping in?’ one commenter wondered.

‘Why are they suppressing this hot search topic? Do they think the public is stupid?’ another person wrote.

One individual implicated in this case is Li Baoxing (李宝兴, born 1955), who was General Manager at Shanxi Aorui. Li is a renowned research professor who was reportedly awarded the title of National Model Worker in 2005. He was formerly affiliated with the Institute of Biomaterials Science and Technology at the Chinese Academy of Sciences, where he developed bone implant materials that benefited thousands of patients across the country. He allegedly joined the Communist Party in 1985.

Some commenters called the entire scandal a “horror film,” with Li Baoxing being the director.

“We know about 4000 [human remains], what about those we don’t know about?”

“These so-called ‘human remains’ were once people like you and me,” another Weibo user wrote: “They were alive, their voices and smile are still in the hearts of family and friends. They liked to be clean, they had their privacy, they are still being missed. We can’t replace ourselves or our loved ones, [yet] they were used and peeled layer by layer.”

By Manya Koetse

1 Title: “探访涉盗卖数千具人体骨骼的山西奥瑞公司,此前已被公安查封” (“Investigation into Shanxi Aorui Bio, involved in the illegal sale of thousands of human bones, which had previously been seized by police”). Original link: https://www.thepaper.cn/newsDetail_forward_28348324

2 Title: “涉嫌非法盗卖数千具遗体用于制作植入材料,山西奥瑞生物八年营收3.8亿” (“Suspected of illegally stealing and selling thousands of human remains for use in making implant materials, Shanxi Aorui Bio made an eight-year revenue of 380 million yuan”). Original link: https://www.guancha.cn/GongSi/2024_08_08_744234.shtml

3 CCTV’s publication is the same as the article published by The Paper, namely: “探访涉盗卖数千具人体骨骼的山西奥瑞公司,此前已被公安查封” (“Investigation into Shanxi Aorui Bio, involved in the illegal sale of thousands of human bones, which had previously been seized by police”). Original link: https://news.cctv.com/2024/08/08/ARTIkxoJEQuHmvTxmxGVmDug240808.shtml. Caixin’s publication was titled “75人卷入山西盗窃倒卖遗体案 多地民政局称已跟进调查” (75 people involved in the theft and sale of human remains in Shanxi, investigations underway by various civil affairs bureaus).

4 For example, by Sina News: “起底倒卖4000具尸体操控者李宝兴- 曾获“全国劳模”称号” (“Li Baoxing, the manipulator who speculated in 4,000 corpses, was awarded the title of “national labor model”). Original link: https://finance.sina.com.cn/chanjing/gsnews/2024-08-08/doc-inchxqva1690315.shtml?cre=sinapc&mod=g.

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©2024 Whatsonweibo. All rights reserved. Do not reproduce our content without permission – you can contact us at info@whatsonweibo.com.

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China Food & Drinks

Chinese Woman with Heartbreak Passes Away after Drinking Bottle of Baijiu

Three friends are held partially responsible for not intervening when the woman consumed 500ml of baijiu.

Manya Koetse

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An incident that happened on the night of May 21, 2023, has become a trending topic on Chinese social media today after a local court examined the case.

A woman named ‘Xiao Qiu’ (alias), a resident of Jiangxi’s Nanchang, apparently attempted to drink her sorrows away after a heartbreaking breakup.

She spent the night at a friend’s house, where she drank about 50cl of baijiu (白酒), a popular Chinese spirit distilled from fermented sorghum that contains between 35% and 60% alcohol. One entire bottle of baijiu, such as Moutai, is usually 50cl.

She was together with three female friends. One of them also consumed baijiu, although not as much, and the two other friends did not drink at all.

As reported by Jiupai News, the intoxicated Xiao Qu ended up sleeping in her car, while one of her sober friends stayed with her. However, at about 5 AM, her friend discovered that Xiao Qiu was no longer breathing. Just about an hour later, she was declared dead at the local Emergency Center. The cause of death was ruled as cardiac and respiratory failure due to alcohol poisoning.

The court found that Xiao Qu’s friends were partly responsible for her death, citing their failure to prevent her excessive drinking and inadequate assistance following her baijiu binge drink session. Each friend was directed to contribute to the compensation for medical expenses and pain and suffering incurred by Qiu’s family.

The friend who also consumed baijiu was assigned a 6% compensation responsibility, while the other two were assigned 3% each.

On Weibo, many commenters do not agree with the court’s decision, asserting that adult individuals should not be held accountable when a friend goes on a drinking spree. Some commenters wrote: “You can tell someone not to drink, but what if they don’t listen?” “Should we record ourselves telling friends not to drink too much from now on?”

This is not the first time for friends to be held liable for an alcohol-related death in China. In 2018, multiple stories went viral involving people who died after excessive drinking at social gatherings.

One case involved a 30-year-old Chinese man who was found dead in his hotel room bathtub in Yangzhou after a formal dinner with friends where he allegedly drank heavily. The man reportedly died of a heart attack. His friends reached a 1 million yuan (±US$157,000) settlement with his family, with the cost shared among the friends who were present during the night.

Surveillance cameras in Jinhua captured how the man was unable to stand or walk after drinking with his friends.

Another case involved a man who died when he was left by his friends at a hotel in Jinhua, Zhejiang province, after heavily drinking at a banquet. Surveillance cameras captured how the man was unable to stand or walk after drinking with his friends. Those friends also paid a compensation together of 610,000 yuan (US$96,000) to the man’s family.

Organisers of an alcohol drinking contest in Henan province were also ordered to pay a compensation of over US$70,000 after one participant died due to excessive alcohol intake in July of 2017.

These cases also triggered online discussions about how Chinese traditional drinking culture often encourages people at the table to drink as much as they can or to exceed their limits; the goal sometimes is to literally “take someone to the ground by drinking.” When someone proposes a toast, everyone at the table is required to finish their glasses, sometimes at a very high pace.

In light of the latest news, some commenters write on Weibo: “No matter what kind of drinking gathering it is, for someone who is already drunk, others should intervene to prevent them from continuing to drink. Even if they invite, provoke, or insist on drinking themselves, they should not be allowed to continue. Otherwise, it not only harms them, you might end up facing legal responsibility yourself.”

Others remind people that overindulging in alcohol when you’re in a state of distress is never a good idea, and that no heartbreak is worth getting drunk over: “There are plenty of other fish in the sea.”

By Manya Koetse

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